GetWellGo, together with patients, caregivers and healthcare advocates in Kenya, will come together on the World Chronic Fatigue Syndrome Day to shed light on a condition that is hidden, misconceived and not properly diagnosed.
The daily life of thousands of Kenyans with this complicated disease may seem like climbing a mountain. Chronic Fatigue Syndrome is not merely about being tired; it is a disabling disorder characterized by excessive fatigue that does not go away with rest, and which is accompanied by some symptoms such as difficulties in thinking, muscle pain, sleep disturbances and post-exertional malaise. With all its acuity, most patients find it hard to be diagnosed and treated in time and they mostly suffer lack of understanding and distrust even in the medical systems. This day in Kenya is not only about awareness but also empathy. Health advocates are telling real-life stories to create awareness.
The availability of specialized treatment to chronic fatigue syndrome in Kenya is low. Even though the role of general practitioners is paramount, there is an increasing need to train and create awareness among the healthcare providers to detect and control the condition. Combination therapy involving lifestyle changes, symptomatic management, and psychological interventions have demonstrated potential at the international level and can be tailored in the Kenyan health care setting.
This is where GetWellGo comes in to provide a connection between patients and global healthcare solutions. GetWellGo is devoted to patient-centered care and assists those who want to have high-quality medical consultation, second opinion, and individual treatment plans with internationally famous specialists. This access can be life-changing to Kenyan patients who struggle to have their diagnosis or management locally.
In addition to medical facilitation, GetWellGo lays stress on emotional and community facilitation. Chronic diseases such as CFS may be lonely and patients may tend to feel good when they associate themselves with other people that are in their situation. The organization will promote a more caring atmosphere by promoting support circles and awareness campaigns, among the affected individuals.
Another pillar of this initiative is education. This day reminds every doctor to keep learning about the disease. There should be enough materials which can provide the right information to educate the doctors to identify the signs and to treat the patients. Greater awareness also contributes to provide knowledge and kindness to the suffering patients.
Those who have this disease should be understanding and patient. People who need help with daily work or support?can really make a big difference in the life of a patient. In Kenya, public awareness campaigns are raising more awareness on these issues forcing communities to unite in favour of the affected people.
New doors are also being opened by technology. International specialists are increasingly accessible to Kenyan patients without the need of traveling due to telemedicine and the digital health platforms. This is especially handy to people whose symptoms render their movement difficult. GetWellGo is still taking advantage of these innovations and patients can now access care on time and irrespective of geographical location.
In the lead up to this significant day that Kenya is celebrating, there is a call to action: to listen, to learn, to support. Chronic Fatigue Syndrome is not necessarily apparent but it has far reached effects. Kenya is making significant strides towards inclusivity and compassion in healthcare by accepting the plight of the affected and seeking improved healthcare solutions.
Finally, GetWellGo always focusses to support Kenyan patients during World Chronic Fatigue Syndrome Day. The aim is to provide knowledge and access to new age medical treatments. GetWellGo believes in focussing on the experience of the patient and deliver hope for a brighter future.
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Author: Anshu Gola from GetWellGo on behalf of Abhishek.
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